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About ECFS

The European Cystic Fibrosis (CF) Society is an international community of scientific and clinical professionals committed to improving survival and quality of life for people with CF by promoting high quality research, education and care.

The ECFS has developed a number of educational activities so far: the ECFS annual conference, the Basic Science conference, the Journal of Cystic Fibrosis, the Education Platform and the development of guidelines and CF courses.

1163
ECFS members in 2023 to-date

eLearning programme on cystic fibrosis (CF)

The ECFS has developed an e-learning education programme on cystic fibrosis (CF).

The programme is intended for all caregivers in CF from allied-health professionals to medical doctors, at all stages of care and knowledge on CF, either beginning to care about patients with CF or seeking knowledge and guidance on a specific topic. The programme consists of three parts, each part designed to build on the knowledge acquired in the previous parts:

  1. Cystic fibrosis for beginners
  2. More about CF
  3. Becoming a CF clinical expert: How to manage…

Care givers beginning in CF will find in the first and second parts of the programme the broad knowledge they need to begin working in the CF field. Experienced clinicians who encounter a very specific situation may learn in the third part the main guidelines for care and treatment of this situation.

The first part of the ECFS eLearning programme on CF is intended for members of the multidisciplinary team beginning in CF, and available on this website. After completion of the first part, the learner:

  • will have acquired the main knowledge necessary to begin taking care of patients with CF: cause and physiopathology of CF, epidemiology, main clinical features, principles of treatment
  • will be able to assist a CF specialist and to fully benefit from a training in a CF centre
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Part 1: CF for beginners

Module 1
The CFTR gene and CFTR Protein

Module 2
Epidemiology of CF

Module 3
Diagnosis for Cystic Fibrosis

Module 4
Overview of Clinical Symptoms

Module 5
Principles of CF care (1): General and Respiratory

Module 6
Principles of CF care (2): Nutrition, Liver and Diabetes

Module 7
Generality on Psychosocial Issues

Part 2:(coming soon)

Part 3: (coming soon)

Lecturers

Carlo Castellani
(Module 1)
Carlos M Farinha
(Module 1)
Lutz Naehrlich
(Module 2)
Andreas Jung
(Module 2)
Isabelle Sermet-Gaudelus
(Module 3)
Thao Nguyen-Khoa
(Module 3)
Emmanuelle Girodon
(Module 3)
Nick Simmonds
(Module 4)
Dorota Sands
(Module 4)
Carsten Schwarz
(Module 5)
Paul McNally
(Module 5)
Michael Wilschanski
(Module 6)
Dimitri Declercq
(Module 6)
Alistair Duff
(Module 7)
Trudy Havermans
(Module 7)